aHUS atypical Hemolytic Uremic Syndrome (aHUS) website

aHUSSource

Legal Statement

Alexion Pharma International Sàrl and its affiliated companies (together, “Alexion”, “we”, or “the Company”) provide this website as a source of general information. This website is linked to other websites and applications for mobile devices (“Applications”) provided by Alexion, which together with this website shall be referred to in this statement as the “Alexion Sites” or “Sites.”

PLEASE READ THIS LEGAL STATEMENT CAREFULLY BEFORE USING THE SITES. THIS STATEMENT INCLUDES:

BY USING THE SITES, YOU SIGNIFY YOUR ASSENT TO THESE TERMS. IF YOU DO NOT AGREE TO THESE TERMS, PLEASE DO NOT USE THE SITES.

Alexion has made reasonable efforts to ensure that information is complete and accurate when posted. However, Alexion makes no warranties or representations as to the completeness or accuracy of the information presented. Further, Alexion does not undertake any obligation to update any information that may change after posting. The medical information contained on this Site and any other linked Sites is intended for informational purposes only. It is not a substitute for actual medical care. Persons requiring diagnosis or treatment or with questions specific to a single individual are urged to contact their local healthcare provider.

Legal Terms and Conditions

Restrictions on Use of Materials
The Site is owned and operated by Alexion Pharma International Sàrl. The contents of the Alexion Site, such as text, graphics, images, logos, button icons, software and other material (the “Material”) are protected under copyright, trademark and other laws. You may not copy, reproduce, republish, modify, upload, post, transmit, or distribute Material in any way, except that you may download one copy of the Material on any single computer for your personal use only, provided you keep intact all copyright and other proprietary notices. Use of the Material for any other purpose is a violation of Alexion’s copyright and other proprietary rights. For purposes of these Legal Terms and Conditions, the use of the Material or a modification of the Material on any other Site or networked computer environment is prohibited unless permission is obtained in writing from Alexion. You may not copy or adapt any Material we use to generate the web pages. This code is also protected by copyright and other laws.

Jurisdictional Issues
The website and its contents are intended for users within  jurisdictions in Europe as indicated on each website and is intended to comply with the laws and regulations in the jurisdictions indicated on the website, without regard to the conflict of law provisions thereof.  Alexion makes no representation that Material is appropriate or available for use in other locations.  By continuing use of the website, you are affirmatively consenting that your use hereof shall be governed by the laws applicable in the jurisdiction indicated on the website, excluding their conflict of law provisions. Those who choose to access a website from other locations do so on their own initiative and are responsible for compliance with local or national laws, if and to the extent local or national laws are applicable. Alexion reserves the right to limit provision of any product or service to any person, geographic region or jurisdiction and to limit the products or services that we provide.

Termination
This agreement is effective until terminated by either party. You may terminate this agreement at any time by destroying all materials obtained from any and all Alexion Site(s) and all related documentation and all copies and installations thereof, whether made under the terms of this agreement or otherwise. This agreement will terminate immediately without notice from Alexion if in Alexion’s sole discretion you fail to comply with any term or provision of this Agreement. Upon termination, you must destroy all materials obtained from this Site and any and all other Alexion Site(s) and all copies thereof, whether made under the terms of this agreement or otherwise. Alexion reserves the right to alter or delete material from this Site or other Alexion Sites at any time and may, at any time, revise the terms of this Agreement by updating this posting. You are bound by any such revision and should therefore periodically visit this page to review the then current terms of this Agreement. The Legal Terms and Conditions set forth for this Site shall survive such termination, including without limitation the paragraphs headed  “Restrictions on Use of Materials”,  “Jurisdictional Issues”, “Termination”, and “Disclaimer.”

Severability
If any of these Legal Terms and Conditions are held invalid or unenforceable by any court of competent jurisdiction, the other provisions of these Legal Terms and Conditions shall remain in full force and effect. If any provision of these Legal Terms and Conditions are held invalid or unenforceable only in part or degree, the remainder will continue in full force and effect to the extent not held invalid or unenforceable.

Disclaimer
This Site is for informational purposes only. You should not use the information contained herein for diagnosing a health or fitness problem or disease. Alexion makes no warranties or representations as to its accuracy. Alexion assumes no liability or responsibility for any errors or omissions in the content of the Site. Alexion has not reviewed all of the sites that may be linked to this Site, and is not responsible for the content of any off-Site pages or any other sites linked to this or other Alexion Sites. Your access to any off-Site pages is at your own risk. THE MATERIALS IN THIS SITE IS PROVIDED “AS IS” AND WITHOUT WARRANTIES OF ANY KIND EITHER EXPRESS OR IMPLIED. TO THE FULLEST EXTENT PERMISSIBLE PURSUANT TO APPLICABLE LAW, ALEXION DISCLAIMS ALL WARRANTIES, EXPRESS OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, IMPLIED WARRANTIES OF MERCHANTABILITY AND FITNESS FOR A PARTICULAR PURPOSE. ALEXION DOES NOT WARRANT THAT THE FUNCTIONS CONTAINED IN THE MATERIALS WILL BE UNINTERRUPTED OR ERROR-FREE, THAT DEFECTS WILL BE CORRECTED, OR THAT THIS SITE OR THE SERVER THAT MAKES IT AVAILABLE ARE FREE OF VIRUSES OR OTHER HARMFUL COMPONENTS. ALEXION DOES NOT WARRANT OR MAKE ANY REPRESENTATIONS REGARDING THE USE OR THE RESULTS OF THE USE OF THE MATERIALS IN THIS SITE IN TERMS OF THEIR CORRECTNESS, ACCURACY, OR RELIABILITY. IN NO EVENT SHALL ALEXION BE LIABLE FOR ANY INDIRECT, SPECIAL, INCIDENTAL OR CONSEQUENTIAL DAMAGES, UNDER ANY LEGAL THEORY, ARISING OUT OF OR IN CONNECTION WITH THIS AGREEMENT, YOUR ABILITY OR INABILITY TO USE THE SITES OR ANY INFORMATION CONTAINED THEREIN. 

Trademark and Copyright Information
©Copyright 1998-2014 Alexion Pharma International Sàrl.  All rights reserved.

Privacy Policy

At Alexion, we understand that various laws and regulations govern data protection and we respect the fact that protecting your privacy is important to you. We also recognize that health and medical information is particularly sensitive. For those reasons, we want to explain our Internet privacy policy to you in this Privacy Policy.  Please review this Privacy Policy to learn about how Alexion collects, uses, shares and protects information. A separate statement regarding Safe Harbor compliance is provided at the end of this Privacy Policy.

First and foremost, the Alexion Site only collects your personal information if you are a medical professional and you choose to give it to us. While we retain the right to share your personal information with our corporate affiliates and with outside companies or agents working on our behalf to help fulfill our business obligations, we do not share any of your personal information with third parties for their own use unless you explicitly give us permission to do so. 

This Privacy Policy applies only to personal information collected online from the Alexion Site. Other Alexion privacy policies govern personal information that is not collected on Alexion Sites. 

Medical Professionals
Information Collected – Information You Give Us

On the Alexion Site, we collect only your personal information (such as your name, address, or e-mail address) when you choose to submit it to us, by clicking on the relevant field on the Doc Check entry page, and we use it only for the purposes which you have approved and set forth in this Privacy Policy. If, as a medical professional, you have agreed to the collection of your data by clicking on the relevant field, the information provided through the Doc Check system will be used for the purposes of statistical analysis and browsing patterns of the Alexion Site.  In some cases, we remove personal identifiers from data and maintain it in aggregate form. We may combine this data with other information to produce anonymous, aggregated statistical information helpful to us in improving our products and services. 

Medical Professionals and Non-Medical Users
Automatically Collected Information

We automatically collect certain types of information whenever you interact with us on the Alexion Site and in some e-mails we may send each other. Automatic technologies we use may include, for example, web server logs and IP addresses, cookies and web beacons.

Web Server Logs and IP Addresses: An IP address is a number assigned to your computer whenever you access the Internet that allows computers and servers to recognize and communicate with each other. Alexion collects IP addresses to conduct system administration and report aggregate information to affiliates, business partners, and/or service providers to conduct website and Application analysis and performance reviews.

Cookies: A cookie is a piece of information that is placed on your computer when you access certain websites and Applications. The cookie uniquely identifies your browser to the server. Cookies allow us to store information on the server to help make your web experience better and to conduct website and Application analysis and performance reviews. Most web browsers are set up to accept cookies, although you can reset your browser to refuse all cookies or to indicate when a cookie is being sent. Note, however, that some portions of our Sites may not work properly if you refuse cookies. The Site hosting our proxy statement and annual report does not use cookies.

Web Beacons: On certain web pages or e-mails, Alexion may utilize a common Internet technology called a “web beacon” (also known as an “action tag” or “clear GIF technology”). Web beacons help analyze the effectiveness of websites by measuring, for example, the number of visitors to a site or how many visitors clicked on key elements of a site. 

Web beacons, cookies and other tracking technologies do not automatically obtain personal information about you. Only if you voluntarily submit personal information, such as by registering or sending e-mails, can these automatic tracking technologies be used to provide further information about your use of the websites to improve their usefulness to you. 

Your Choices
You have certain options regarding your use of the Alexion Site. For medical professionals, you could decide not to submit any personal information at all by not entering it into any forms or data fields on the Doc Check entry page and not using any available personalized services. 

For both medical professionals and non-medical users, if you wish to prevent cookies from tracking you anonymously as you navigate our Site, you can reset your browser to refuse all cookies or to indicate when a cookie is being sent. Note, however, that some portions of our Site may not work properly if you refuse cookies. 

Use of Personal Information
Alexion and/or the service providers, and other third parties we hire to perform services on our behalf may use any personal information you choose to give us for the purposes set forth in this Privacy Policy. We may refer to this information to better understand your needs and how we can improve our products and services. We also use depersonalized, aggregated information collected from our Site to help us understand trends and customer needs. For example, we may analyze the gender or age of visitors to the Site about a particular medication or disease state, and we may use that analysis of aggregate data internally or share it with others. 

Data Sharing and Transfer
Alexion may share personal information about you with various outside companies or service providers  working on our behalf to help further our business requirements, such as providing customer service, sending marketing communications about our products, services and offers, and doing technological maintenance. We may also share personal information with our company’s affiliates for such purposes. 

We may also disclose personal information for these purposes:

1. in connection with the sale, assignment or other transfer of the business of the site to which the data relates;

2. to respond to requests of government or law enforcement agencies or where required or permitted by applicable laws, court orders, or government regulations; or

3. when needed for corporate audits or to investigate or respond to a complaint or security threat.

No Third-Party Direct Marketing Use: Alexion will not sell or otherwise transfer the personal information you provide to us at our Site to any third parties for their own direct marketing use unless we provide clear notice to you and obtain your explicit consent for your data to be shared in this manner. 

Links to Other Sites
Links to other websites not controlled by Alexion (non-Alexion) are provided for convenience only.  When you click on such a link you are leaving the aHUS Source EU website and connecting to a site that is not under the control of Alexion. Alexion is not responsible for the contents of any such site or any further links from such site. The inclusion of any link does not imply the endorsement of the linked site by Alexion. You are solely responsible for your interactions with any such site and/or any further links from such site.

Privacy Policy for Children Under 18
Our Site is not intended or designed for children under the age of 18. If you are under the age of 18 you must not provide your personal information. We do not collect personal information from any person we actually know is a child under the age of 18.

Safe Harbor Privacy Statement
Alexion complies with the U.S.-EU Safe Harbor Framework and the U.S.-Swiss Safe Harbor Framework as set forth by the U.S. Department of Commerce regarding the collection, use, and retention of personal information from European Union member countries (EU) and Switzerland, respectively. Alexion has certified that it adheres to the Safe Harbor Privacy Principles of notice, choice, onward transfer, security, data integrity, access, and enforcement. To learn more about the Safe Harbor program, and to view Alexion’s certification, please visit http://www.export.gov/safeharbor/.

Limitation on Scope of Principles
Adherence by the Company to these privacy principles may be limited to the extent necessary to meet the Company’s regulatory, legal, governmental, or national security obligations. 

Updates to Privacy Statement
ANY CHANGES TO THE ALEXION PRIVACY POLICY, INCLUDING THE SAFE HARBOR STATEMENT, WILL BE PROMPTLY POSTED ON THIS PAGE. THE DATE ON WHICH THE POLICY WAS LAST UPDATED IS INCLUDED AT THE END OF THIS LEGAL STATEMENT. WE MIGHT NOT NOTIFY YOU OF ANY CHANGES TO THIS PRIVACY POLICY, YOU SHOULD CHECK THIS PAGE PERIODICALLY FOR ANY CHANGES. BY ACCESSING AND UTILIZING THESE SITES, YOU AGREE THAT ALL DISPUTES AND OTHER MATTERS THAT MAY ARISE BETWEEN YOU OR YOUR REPRESENTATIVES AND ALEXION OR ITS EMPLOYEES, CONTRACTORS OR AGENTS IN CONNECTION WITH THESE SITES SHALL BE GOVERNED UNDER THE LAWS OF SWITZERLAND, UNDER THE EXCLUSIVE JURISDICTION OF THE COURTS OF LAUSANNE.

How to contact Alexion
If you have any questions about Alexion’s Privacy Policy or the information practices of our Site, you may contact us as follows:

Legal Department
Alexion Pharma International Sàrl
34 avenue du Tribunal Fédéral
1005 Lausanne
Switzerland

© 2014 Alexion Pharma International Sàrl
Last updated on:  March 27, 2014