aHUS atypical Hemolytic Uremic Syndrome (aHUS) website

For Patients

Learn about atypical Haemolytic Uraemic Syndrome (aHUS)

atypical Haemolytic Uraemic Syndrome (aHUS) is a life threatening disease with devastating consequences

It may be scary to find out that you or your loved one may have aHUS. Although aHUS is a life-threatening disease, learning about your disease is important. The more you know, the better you can manage it.1


Here are some key facts about aHUS:

  • aHUS is caused by genetic problems in the complement system, which is a part of the body’s immune system
  • aHUS is important to diagnose accurately because it has signs and symptoms that are similar to those of other diseases.2 Differentiating aHUS from other similar diseases as soon as possible is very important3,4
  • Plasma exchange/infusion has been used to manage aHUS symptoms, but plasma therapy has not been studied in well-controlled trials7

Learn more about aHUS

 

1. What is aHUS?

aHUS is a rare, life-threatening disease that can damage vital organs such as the kidneys, heart and brain. It affects both adults and children.5,6

1.1 What causes aHUS?

aHUS is caused by a change, or mutation, in a person’s genes. However, as several different genes can be involved, the absence of an identified genetic mutation does not rule out aHUS.7

1.2 How is aHUS diagnosed?

It’s important to diagnose aHUS accurately because it has signs and symptoms similar to those of other diseases.2

1.3 What are the potential risks of aHUS?

People with aHUS have an ongoing risk of sudden, life-threatening complications.1

1.4 What are the management options and treatment for aHUS?

Talk with your doctor about a management plan that includes treatment and frequent follow-up or monitoring of your rare disease.


2. Get support

2.1 Patient associations

2.2 Patient support programme

2.3 aHUS resources & links

Learn more about aHUS and patients with aHUS by visiting the aHUS resources & links page.