aHUS atypical Hemolytic Uremic Syndrome (aHUS) website

What is aHUS?

What are the potential risks of aHUS?

People with aHUS have a constant risk of sudden, catastrophic, and life threatening symptoms and complications.1,1b,2 As the disease continues to damage small blood vessels, vital organs can fail to work, either suddenly or over time.3-6

aHUS may feel like an acute illness. Once you feel better you may want to discontinue treatment. However, if treatment is discontinued, the consequences can be devastating.1,3,4,6

  • aHUS damages the kidneys. The kidneys’ job is to clean toxins from the blood and eliminate them through the urine. Many people will need long-term dialysis or kidney transplant if their kidneys stop working1,7,8
  • Extremely high blood pressure and oedema (swelling) are other complications4,6,9
  • Up to 48% of patients experience neurological (brain and nervous system) symptoms2,10,11
  • About 4 out of 10 patients (43%) of patients have cardiovascular (heart and circulation) problems4,10
  • Almost one-third (30%) have diarrhoea and other problems linked to the digestive system2,3,6


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